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Design Case study

Dementia Care Service Design

Creating a service that builds the family caregiver’s capabilities
by
Stuti Prakashkumar and Prof. Pramod Khambete
IDC, IIT Bombay
Links
 
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References:

  • https://www.alz.org/alzheimers-dementia/what-is-dementia
  • ARDSI Dementia India Report https://ardsi.org/pdf/Dementia%20India%20Strategy%20Report%202018.pdf
     
  • Wenger-Trayner, (2015) Planning and evaluating social learning, https://wenger-trayner.com/resources/planning-and-evaluating-social-learning/
     
  • Li, L.C., Grimshaw, J.M., Nielsen, C. et al. Evolution of Wenger’s concept of community of practice. Implementation Sci 4, 11 (2009). https://doi.org/10.1186/1748-5908-4-11
     
  • Tapas Elder Care. https://www.tapashealthcare.com
     
  • What Is Dementia? Symptoms, Types, and Diagnosis: https://www.nia.nih.gov/health/what-dementia-symptoms-types-and-diagnosis
     
  • Dementia language guidelines; 2018
  • Kumar CT, Sudhir, Sanju George, and Roy Abraham Kallivayalil. “Towards a dementia-friendly India.” Indian journal of psychological medicine 41, no. 5 (2019): 476-481.
  • Shaji, K. S. (2009). Dementia care in developing countries: The road ahead. Indian Journal of Psychiatry, 51(Suppl1), S5.
  • Nulkar, Amit, Vasudeo Paralikar, and Sanjay Juvekar. “Dementia in India–a call for action.” Journal of Global Health Reports 3 (2019): e2019078.
  • Prince M , Bryce R , Ferri CP ( 2012 ) World Alzheimer Report 2011: The Benefits of Early Diagnosis and Intervention .
  • Lamont, Ruth A., Catherine Quinn, Sharon M. Nelis, Anthony Martyr, Jennifer M. Rusted, John V. Hindle, Bryony Longdon, Linda Clare, and the IDEAL Study Team. “Self-esteem, self-efficacy, and optimism as psychological resources among caregivers of people with dementia: findings from the IDEAL study.” International Psychogeriatrics 31, no. 9 (2019): 1259-1266.
  • Cooper C , Balamurali TBS , Livingston G ( 2007 April) A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia . International Psychogeriatrics 19 ( 2 ): 175 – 195 .
  • Gupta, Rashmi, Nancy Rowe, and Vijayan K. Pillai. “Perceived caregiver burden in India: Implications for social services.” Affilia 24, no. 1 (2009): 69-79.
  • Gallagher-Thompson, Dolores, Yuan Marian Tzuang, Alma Au, Henry Brodaty, Georgina Charlesworth, Rashmi Gupta, Sang E. Lee, Andres Losada, and Yea-Ing Shyu. “International perspectives on nonpharmacological best practices for dementia family caregivers: a review.” Clinical Gerontologist 35, no. 4 (2012): 316-355.
  • Gupta, Rashmi, Vijayan Kumara Pillai, and Eileen F. Levy. “Relationship quality and elder caregiver burden in India.” Journal of Social Intervention: Theory and Practice 21, no. 2 (2012): 39-62.
  • Lusch, R. F., Vargo, S. L., and O’brien, M. (2007). Competing through service: Insights from service-dominant logic. Journal of retailing, 83(1), 5-18.
  • Woods, R. T., Keady, J., and Seddon, D. (2008). Involving families in care homes: a relationship-centred approach to dementia care. Jessica Kingsley Publishers.
     
  • Shove, E., Pantzar, M., and Watson, M. (2012). The dynamics of social practice: Everyday life and how it changes. Sage.
     
  • Shove, E. (2007). The design of everyday life. Berg.
     
  • Lusch, R. F., Vargo, S. L., & O’brien, M. (2007). Competing through service: Insights from service-dominant logic. Journal of retailing, 83(1), 5-18.
  • Zomerdijk, L. G., & Voss, C. A. (2010). Service design for experience-centric services. Journal of service research, 13(1), 67-82.
  • Reckwitz, A. (2002) ‘Toward a Theory of Social Practices: A Development in Culturalist Theorizing’, European Journal of Social Theory, 5(2), pp. 243–263.
    doi: 10.1177/13684310222225432
  • Wenger, E. (1998). Communities of practice: Learning as a social system. Systems thinker, 9(5), 2-3.
  • Pyrko I, Dörfler V and Eden C (2017) Thinking together: What makes communities of practice work? Human Relations 70(4): 389–409.
  • Valerie Farnsworth, Irene Kleanthous & Etienne Wenger-Trayner (2016): Communities of Practice as a Social Theory of Learning: a Conversation with Etienne Wenger, British Journal of Educational Studies, DOI: 10.1080/00071005.2015.1133799
  • Lackner 2014: Human Practice Centered Design Service Designing Practice Transition - Community Supported Agriculture as a Case Study by Christiana Lackner
  • Wenger, E., Trayner, B., and de Laat, M. (2011) Promoting and assessing value creation in communities and networks: a conceptual framework. Rapport 18, Ruud de Moor Centrum, Open University of the Netherlands.
     
  • Tillu, Gauri (2019) Service Design for Assisted Home Care for Dementia Patients
     
  • Wenger, Etienne, Richard McDermott, William M. Snyder, and In Silicon Valley. “Cultivating communities of practice: Aguide to managing knowledge-Seven Principles for Cultivating Communities of Practice.” (2002).
  • Wenger-Trayner, E., Fenton-O’Creevy, M., Hutchinson, S., Kubiak, C., & Wenger-Trayner, B. (Eds.). (2014). Learning in landscapes of practice: Boundaries, identity, and knowledgeability in practice-based learning. Routledge.

Other Links:
• Useful resource e-links related to 'Interaction Design'
• Interaction Design at IDC, IIT Bombay

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